INFORMATION/RESOURCES

General Information:

Accessibility

Advocacy/Self-Determination 

Life Stages Tool Guide  – The Nevada Governor’s Council on Developmental Disabilities (NGCDD) has created the Life Stages Guide; a tool to help individuals with disabilities and their families plan for, and make informed choices to live the most self-determined life they can at any age. The NGCDD has heard from the community that often times, individuals with disabilities and/or their family members are overwhelmed and unsure of how to navigate through the system. The Life Stages Guide was created as a tool to prepare for and seek services, supports, and resources by asking thought-provoking questions they may not have thought of asking or know to ask on their own.

This guide was adapted with permission from Charting the Life Course: A Guide for Individuals, Families, and Professionals from Missouri Family to Family. It represents the viewpoints of individuals with disabilities, parents and family members on what they found helpful, wish for their future, or wished they had thought about during the different ages and stages in life. It also includes information on self-determination, and a list of various resources and services.

We hope you will find this guide informational and useful for you, your family members and/or consumers. The guide is available in three forms: as a downloadable PDF below (in standard and accessible format) and through our office as an actual handbook. All are free of cost however, we ask that you please compete and return the accompanying survey in the link below as your feedback is important to us. Please let us know if this guide was useful by completing this survey and emailing to Ellen Marquez at elmarquez@dhhs.nv.gov

  • Life Stages June 2016 (English)
  • Life Stages in Spanish 6-2016 PDF
  • Life Stages Accessible Format (English)
  • The Art of Impact is an e-book/website for the advocate who wants to be on a journey whether just beginning or very experienced.  It’s a guide to self-advocacy and healthy living in your community. It will help introduce you to self-advocacy. Those who already know about self-advocacy can learn more about it. You can learn how to practice and improve your self-advocacy skills. You can also learn tips from veteran leaders.

Advocacy Groups in Nevada

  • People First of Nevada
  • A Team Nevada
  • Kiwanis Aktion Club – meetings twice a month in Gardnerville. Contact: Steve Decker, Executive Director, Family Support Council, 775-782-8692 | sdecker@family-support.org

Employment

Financial Planning

Guardianship

  • The 2015 Legislature passed AB 128 which created the form below for a Durable Power of Attorney (DPA) written in far simpler language for health care decisions for adults with intellectual disabilities. The old form was felt by Physicians and other healthcare providers to be too difficult for an adult with intellectual disabilities to understand.  Therefore, they would often refuse to accept a DPA signed by an adult with an intellectual disability, avoiding and/or delaying important treatment options.
  • Durable Power of Attorney for adults w/ID
  • Guardianship Handbook

Home and Community Based Medicaid Waivers

Living environments for people with disabilities must be integrated in and provide full access to the community and be places where individuals choose to live. Homes must offer personal rights to privacy and dignity and allow individuals to independently make choices about daily activities, their physical environment and who they interact with.

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Housing

Individual/Family Support 

  •  A great website with resources to support families throughout the lifespan of their family member with intellectual and developmental disabilities.
  • Financial assistance to participate in conferences, workshops, and other training opportunities: Consumer Leadership Funds

Information/Referral/Independent Living Support/Services

Legislative

Managed Care in Nevada

The Department of Health and Human Services is evaluating alternative service delivery models aimed at achieving better care for patients, better health for our communities and lower costs through improved health outcomes. The Division of Health Care Financing and Policy (Nevada Medicaid) currently provides services under two different delivery models, Fee-For-Service and Managed Care. A Managed Care Organization arranges for a medical service provider to provide health care services to individuals enrolled in their organization.

Read more

Nevada DD Network Partners

Seclusion and Restraint

Transition

2015 Nevada Disabilities Conference – Presenter Materials

The materials in this section do not belong to the NGCDD, they are meant for informational purposes only are not necessarily accessible. If you should need any of these materials in an accessible format, please contact the presenter directly.

  1. Positive Behavior Support
    Ashley Greenwald M.A. BCBA, Christine O’Flaherty M.A. BCBA
    Positive Behavior Support uses evidence-based practices to address challenging behaviors through a prevention model. This presentation will address some basics of behavior, how behavior is learned, why problem behavior works for the individual engaging it, and what we can do to teach and facilitate appropriate skills. Presentation attendees will learn several useful strategies in identifying and preventing challenging behaviors that they can begin using immediately at home, school or the workplace. Information and resources will be provided for more intensive PBS supports through Positive Behavior Support-Nevada and success stories from parents of children with disabilities were shared.
    Presentation – Positive Behavior Support
  2. Youth Transition & Adult Services and Supports Panel
    Elizabeth Fedali, Laura Valentine, Tearra Donovan, Joni Inglis, Kristen Darnielle, Ken Pierson, Michelle Merrill, Janice John
    Various State and local resources, supports and services for adults with disabilities were shared.
    Presentation – Final Housing
    Presentation – Housing Test BF
    Presentation – NVHS_Special_Needs_Service_Overview
  3. Building an “I Can” Attitude: Technology Tools to Support Reading & Writing for Students who Struggle
    Liz Issacs SLP, Kristina SLP, Shawn Schneider, Kathi O’Meara
    Taking a look at free and low cost tools/resources to remove obstacles and promote reading and writing success for diverse learners. There will be information on how to choose from available options and what features make educational materials accessible to students with learning difficulties. You will learn about the Accessible Educational Materials Initiative (AEM) and Universal Design for Learning (UDL). There was a video of students using some of the technology, and a demonstration of readily available and easy to use technology options. There were print resources, brochures, and a wiki space with active links available to participants.
    Presentation – Building an I Can Attitude-Technology to Support Students who Struggle
  4. Connecting Oral Health to Every Child
    Lynn Bethel RHD, MPH, Yvonne Flynn
    This presentation will cover common oral diseases, the link between oral health and systemic health, the impact of nutritional choice on dental health, evidence-based oral disease prevention strategies, and practical resources (internet and hard copy) to promote oral health at home and in the classroom, in addition to the medical setting. In addition, a parent’s perspective on how coordinated strategies to support optimal oral health for CSHCN will also be shared.
    Presentation – Connecting Oral Health to Every Child
  5. The Importance of Sexual Education for Individuals with Disabilities
    Megan Kennedy, Deisy Hernandez
    It is vital for individuals with disabilities to receive sexual education. Children with disabilities are part of a vulnerable population that experience sexual abuse at a rate that is between 2-10 times higher than that for children without disabilities. With the knowledge that medically accurate sex education provides, individuals with disabilities can advocate for themselves and their needs and desires in order to protect their health and well-being. Sexual education includes but is not limited to health relationships, decision making skills, self-care and a health body image.
    Presentation – Nevada Disabilities Conference 7-20-15 & 7-21-15
    Presentation
  6. What Does a Family-Centered Medical Home Look Like for Children with Special Healthcare Needs and Disabilities
    Molly Cole, Marcia O’Malley, Melanie Kauffman
    Presenters from Family Voices National and Family TIES of Nevada, the Family Voices Nevada Affiliate, will share information about what a family-centered medical home looks like for children with special healthcare needs and disabilities in Nevada and across the nation. Family Voices is a National Network with 45 state affiliates which brings a respected family perspective to keep families at the center of children’s health care – to improve health care programs and policies and ensure that health care systems include, listen to, and honor the voices of families.
    FamilyTIES_FCMedHomeAttendees
    fcca_FamilyTool
    fcca_ProviderTool
    MedicalHomeParents
    MedicalHomeProviders
    UTCareNotebook
  7. Dementia & Developmental Disabilities: Supporting Individuals in Maintaining Quality of Life
    Tracy Smith M.A., Elaine Brown PhD, Michelle Rubenstein MSW
    Alzheimer’s Disease is a growing epidemic that affects all people. Unfortunately, it dis-proportionality impacts individuals living with Down Syndrome. It is estimated that nearly 50% of all individuals with Down Syndrome will be diagnosed with Alzheimer’s Disease by the time they reach 60. Alzheimer’s Disease raises a number of unique challenges that demand a holistic and person centered approach. This presentation will provide an overview of Alzheimer’s Disease and related dementia’s and how they impact individuals with IDD. Best practice models of support and case examples will be presented for supporting individuals to remain in dementia capable community home options.
    NDC Presentation Final
  8. Break Barriers, Open Doors through Biking!
    Nicole Welchel, Amanda Merrill, & Past I Can Bike Rider
    I Can Bike is an extraordinary camp that teaches children and adults with cognitive and developmental disabilities to ride two-wheel bicycles through an ingenious serious of rollers. During this presentation, participants will learn valuable information about how to get a child or adult ready to ride a two-wheel bike, including pre-riding skills, strength training exercises, and motivation. They will also learn why independence is important in a child’s and in an adult’s life and how having your own transportation Opens Doors! For more information, please visit the website for the Down Syndrome Network of Northern Nevada: http://dsnnn.org/
    Conference PPT
  9. Early Intervention & Family Stress: What Parents Wish You Knew
    Pam Young M.Ed, Alaintha Peppard
    Parenting is a stressful job under the best of circumstances, but for families of children who are medically fragile and enrolled in early intervention services, stress levels may be higher. Effective communication between parents and professionals can help to alleviate the stress. In this presentation a developmental specialist will share techniques for partnering with parents of children who are medically fragile, and a parent of a child with disabilities will share her “wish list” for effective with professionals.
    Nevada Disabilities Conference 2015
  10. The Autism Process: Considerations for Identification and Treatment of Autism Spectrum Disorders
    Rebecca K. Avrans-Feeney, Ph.D., BCBA-D, Lauren Brown, M.A., BCBA
    Identification and diagnosis of autism is becoming more sophisticated, with methods for identification possible at younger ages. Unfortunately, many children do not receive the diagnosis until they’re older, even though signs of autism were apparent earlier in development. Given the importance of early intervention, it is crucial to help family members and professionals to identify signs of autism. This talk will focus on typical growth and development in children, identification and assessment of young children who might be on the autism spectrum, and resources and considerations for families once they receive a diagnosis.
    *The presentation file for this exceeds the upload limit, please contact Ellen Marquez at elmarquez@dhhs.nv.gov or 775- 684-8619 to request the file via email.*
  11. Integrating Social Media and Assistive Technology to Grow Life Connections – #MOTIVATE
    Robbin Vasquez
    “What if?” What if students and their families were comfortable with using technology tools and social media to connect with the world? How much more would they write independently? How would their quality of life change? Where might this take them in terms of opening doors to their future? Explore examples of students and adults using resources to connect and enrich their lives. Take away resources include: a Belief Buster fact sheet; a Resource List with sites that list many ways to use social media in the classroom; and examples of social media currently published by students and adults with disabilities.
    Social media disability conference
    Social Media References Final
  12. Nevada’s Strategic Plan Toward Integrated Employment: From Meaningful Community-Based Activities to Earning a Paycheck
    Jane Gruner, Shelley Hendren, Sherry Manning, Scott Harrington, Rosie Melarkey, Heather Schomberg
    Executive Order 2014-16 created the Governor’s Taskforce on Integrated Employment. The Taskforce is charged with examining and evaluating current employment programs and resources for individual with ID/DD, and creating 3, 5 and 10-year strategic plans that advance integrated employment in Nevada. The three presenters will provide an update on the progress of the Taskforce to date. For persons with Intellectual and Developmental Disabilities (ID/DD), states are moving from segregated to community-based employment. This shift is for different reasons (e.g. DOJ pressure, etc.). There is some controversy with what is a “meaningful day” for persons with ID/DD, but the presenters will discuss and share person-centered examples. These examples capture a person choosing who they want to be with, what they want to do, and where they want to go, with supports that allow them to access the community for social/recreational, independent living, and employment. This will lead to an inclusive, supportive, community and diverse workforce.
    NV_Dis-Conference-2015 copy
    Taskforce presentation July 2015 Rev 3
    2015 NACDD Submitted Proposal

Please note this list is not all inclusive. Views expressed on these sites do not necessarily represent the official views of the state of Nevada, the NGCDD, the Administration on Intellectual and Developmental Disabilities or any other related or supporting agency or organization. The NGCDD holds no responsibility for other website content and no endorsement should be inferred.