- President’s Committee on ID 2016 Report, Strengthening an Inclusive Pathway for People with Intellectual Disabilities and Their Families
Life Stages Tool Guide – The Nevada Governor’s Council on Developmental Disabilities (NGCDD) has created the Life Stages Guide; a tool to help individuals with disabilities and their families plan for, and make informed choices to live the most self-determined life they can at any age. The NGCDD has heard from the community that often times, individuals with disabilities and/or their family members are overwhelmed and unsure of how to navigate through the system. The Life Stages Guide was created as a tool to prepare for and seek services, supports, and resources by asking thought-provoking questions they may not have thought of asking or know to ask on their own.
This guide was adapted with permission from Charting the Life Course: A Guide for Individuals, Families, and Professionals from Missouri Family to Family. It represents the viewpoints of individuals with disabilities, parents and family members on what they found helpful, wish for their future, or wished they had thought about during the different ages and stages in life. It also includes information on self-determination, and a list of various resources and services.
We hope you will find this guide informational and useful for you, your family members and/or consumers. The guide is available in three forms: as a downloadable PDF below (in standard and accessible format) and through our office as an actual handbook. All are free of cost however, we ask that you please compete and return the accompanying survey in the link below as your feedback is important to us. Please let us know if this guide was useful by completing this survey and emailing to Ellen Marquez at firstname.lastname@example.org
- Life Stages June 2016 (English)
- Life Stages in Spanish 6-2016 PDF
- Life Stages Accessible Format (English)
- The Art of Impact is an e-book/website for the advocate who wants to be on a journey whether just beginning or very experienced. It’s a guide to self-advocacy and healthy living in your community. It will help introduce you to self-advocacy. Those who already know about self-advocacy can learn more about it. You can learn how to practice and improve your self-advocacy skills. You can also learn tips from veteran leaders.
Advocacy Groups in Nevada
- Transition Guide to Post Secondary Education and Employment for Students and Youth with Disabilities
- Transition Guide
- Guide to Secondary Transition Planning
- Workforce Innovation and Opportunity Act (WIOA)
- OSAC – Guide to Work
- OSAC – Using Your Services to Get a Community Job
- OSAC Presentation
- A great website with resources to support families throughout the lifespan of their family member with intellectual and developmental disabilities.
- Financial assistance to participate in conferences, workshops, and other training opportunities: Consumer Leadership Funds
Accessible and Inclusive Tool Guide
- Inclusive and Accessible Meetings, Presentations and Materials
- Designing Accessible Events for Persons with Disabilities
Our DD Network Partners
- National Association of Councils on Developmental Disabilities
- Nevada Center for Excellence in Disabilities
- Nevada Disability Advocacy Law Center
Seclusion and Restraint
- The 2015 Legislature passed AB 128 which created the form below for a Durable Power of Attorney (DPA) written in far simpler language for health care decisions for adults with intellectual disabilities. The old form was felt by Physicians and other healthcare providers to be too difficult for an adult with intellectual disabilities to understand. Therefore, they would often refuse to accept a DPA signed by an adult with an intellectual disability, avoiding and/or delaying important treatment options.
- Durable Power of Attorney for adults w/ID
- Guardianship Handbook
Information/Referral/Independent Living Support/Services
- Quick guide to access health/developmental services and other related supports in Nevada: At A Glance
- Project ASSIST
- Department of Health and Human Services Aging and Disability Services Division
- Family TIES of Nevada
- Northern Nevada Center for Independent Living
- Southern Nevada Center for Independent Living
2015 Nevada Disabilities Conference – Presenter Materials
The materials in this section do not belong to the NGCDD, they are meant for informational purposes only. If you should need any of these materials in an accessible format, please contact the presenter directly.
- Positive Behavior Support
Ashley Greenwald M.A. BCBA, Christine O’Flaherty M.A. BCBA
Positive Behavior Support uses evidence-based practices to address challenging behaviors through a prevention model. This presentation will address some basics of behavior, how behavior is learned, why problem behavior works for the individual engaging it, and what we can do to teach and facilitate appropriate skills. Presentation attendees will learn several useful strategies in identifying and preventing challenging behaviors that they can begin using immediately at home, school or the workplace. Information and resources will be provided for more intensive PBS supports through Positive Behavior Support-Nevada and success stories from parents of children with disabilities were shared.
Presentation – Positive Behavior Support
- Youth Transition & Adult Services and Supports Panel
Elizabeth Fedali, Laura Valentine, Tearra Donovan, Joni Inglis, Kristen Darnielle, Ken Pierson, Michelle Merrill, Janice John
Various State and local resources, supports and services for adults with disabilities were shared.
Presentation – Final Housing
Presentation – Housing Test BF
Presentation – NVHS_Special_Needs_Service_Overview
- Building an “I Can” Attitude: Technology Tools to Support Reading & Writing for Students who Struggle
Liz Issacs SLP, Kristina SLP, Shawn Schneider, Kathi O’Meara
Taking a look at free and low cost tools/resources to remove obstacles and promote reading and writing success for diverse learners. There will be information on how to choose from available options and what features make educational materials accessible to students with learning difficulties. You will learn about the Accessible Educational Materials Initiative (AEM) and Universal Design for Learning (UDL). There was a video of students using some of the technology, and a demonstration of readily available and easy to use technology options. There were print resources, brochures, and a wiki space with active links available to participants.
Presentation – Building an I Can Attitude-Technology to Support Students who Struggle
- Connecting Oral Health to Every Child
Lynn Bethel RHD, MPH, Yvonne Flynn
This presentation will cover common oral diseases, the link between oral health and systemic health, the impact of nutritional choice on dental health, evidence-based oral disease prevention strategies, and practical resources (internet and hard copy) to promote oral health at home and in the classroom, in addition to the medical setting. In addition, a parent’s perspective on how coordinated strategies to support optimal oral health for CSHCN will also be shared.
Presentation – Connecting Oral Health to Every Child
- The Importance of Sexual Education for Individuals with Disabilities
Megan Kennedy, Deisy Hernandez
It is vital for individuals with disabilities to receive sexual education. Children with disabilities are part of a vulnerable population that experience sexual abuse at a rate that is between 2-10 times higher than that for children without disabilities. With the knowledge that medically accurate sex education provides, individuals with disabilities can advocate for themselves and their needs and desires in order to protect their health and well-being. Sexual education includes but is not limited to health relationships, decision making skills, self-care and a health body image.
Presentation – Nevada Disabilities Conference 7-20-15 & 7-21-15
- What Does a Family-Centered Medical Home Look Like for Children with Special Healthcare Needs and Disabilities
Molly Cole, Marcia O’Malley, Melanie Kauffman
Presenters from Family Voices National and Family TIES of Nevada, the Family Voices Nevada Affiliate, will share information about what a family-centered medical home looks like for children with special healthcare needs and disabilities in Nevada and across the nation. Family Voices is a National Network with 45 state affiliates which brings a respected family perspective to keep families at the center of children’s health care – to improve health care programs and policies and ensure that health care systems include, listen to, and honor the voices of families.
- Dementia & Developmental Disabilities: Supporting Individuals in Maintaining Quality of Life
Tracy Smith M.A., Elaine Brown PhD, Michelle Rubenstein MSW
Alzheimer’s Disease is a growing epidemic that affects all people. Unfortunately, it dis-proportionality impacts individuals living with Down Syndrome. It is estimated that nearly 50% of all individuals with Down Syndrome will be diagnosed with Alzheimer’s Disease by the time they reach 60. Alzheimer’s Disease raises a number of unique challenges that demand a holistic and person centered approach. This presentation will provide an overview of Alzheimer’s Disease and related dementia’s and how they impact individuals with IDD. Best practice models of support and case examples will be presented for supporting individuals to remain in dementia capable community home options.
NDC Presentation Final
- Break Barriers, Open Doors through Biking!
Nicole Welchel, Amanda Merrill, & Past I Can Bike Rider
I Can Bike is an extraordinary camp that teaches children and adults with cognitive and developmental disabilities to ride two-wheel bicycles through an ingenious serious of rollers. During this presentation, participants will learn valuable information about how to get a child or adult ready to ride a two-wheel bike, including pre-riding skills, strength training exercises, and motivation. They will also learn why independence is important in a child’s and in an adult’s life and how having your own transportation Opens Doors! For more information, please visit the website for the Down Syndrome Network of Northern Nevada: http://dsnnn.org/
- Early Intervention & Family Stress: What Parents Wish You Knew
Pam Young M.Ed, Alaintha Peppard
Parenting is a stressful job under the best of circumstances, but for families of children who are medically fragile and enrolled in early intervention services, stress levels may be higher. Effective communication between parents and professionals can help to alleviate the stress. In this presentation a developmental specialist will share techniques for partnering with parents of children who are medically fragile, and a parent of a child with disabilities will share her “wish list” for effective with professionals.
Nevada Disabilities Conference 2015
- The Autism Process: Considerations for Identification and Treatment of Autism Spectrum Disorders
Rebecca K. Avrans-Feeney, Ph.D., BCBA-D, Lauren Brown, M.A., BCBA
Identification and diagnosis of autism is becoming more sophisticated, with methods for identification possible at younger ages. Unfortunately, many children do not receive the diagnosis until they’re older, even though signs of autism were apparent earlier in development. Given the importance of early intervention, it is crucial to help family members and professionals to identify signs of autism. This talk will focus on typical growth and development in children, identification and assessment of young children who might be on the autism spectrum, and resources and considerations for families once they receive a diagnosis.
*The presentation file for this exceeds the upload limit, please contact Ellen Marquez at email@example.com or (775) 684-8619 to request the file via email.*
- Integrating Social Media and Assistive Technology to Grow Life Connections – #MOTIVATE
“What if?” What if students and their families were comfortable with using technology tools and social media to connect with the world? How much more would they write independently? How would their quality of life change? Where might this take them in terms of opening doors to their future? Explore examples of students and adults using resources to connect and enrich their lives. Take away resources include: a Belief Buster fact sheet; a Resource List with sites that list many ways to use social media in the classroom; and examples of social media currently published by students and adults with disabilities.
Social media disability conference
Social Media References Final
- Nevada’s Strategic Plan Toward Integrated Employment: From Meaningful Community-Based Activities to Earning a Paycheck
Jane Gruner, Shelley Hendren, Sherry Manning, Scott Harrington, Rosie Melarkey, Heather Schomberg
Executive Order 2014-16 created the Governor’s Taskforce on Integrated Employment. The Taskforce is charged with examining and evaluating current employment programs and resources for individual with ID/DD, and creating 3, 5 and 10-year strategic plans that advance integrated employment in Nevada. The three presenters will provide an update on the progress of the Taskforce to date. For persons with Intellectual and Developmental Disabilities (ID/DD), states are moving from segregated to community-based employment. This shift is for different reasons (e.g. DOJ pressure, etc.). There is some controversy with what is a “meaningful day” for persons with ID/DD, but the presenters will discuss and share person-centered examples. These examples capture a person choosing who they want to be with, what they want to do, and where they want to go, with supports that allow them to access the community for social/recreational, independent living, and employment. This will lead to an inclusive, supportive, community and diverse workforce.
Taskforce presentation July 2015 Rev 3
2015 NACDD Submitted Proposal
Please note this list is not all inclusive. Views expressed on these sites do not necessarily represent the official views of the state of Nevada, the NGCDD, the Administration on Intellectual and Developmental Disabilities or any other related or supporting agency or organization. The NGCDD holds no responsibility for other website content and no endorsement should be inferred.